Keywords
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribers receive full online access to your subscription and archive of back issues up to and including 2002.
Content published before 2002 is available via pay-per-view purchase only.
Subscribe:
Subscribe to Clinics in Chest MedicineAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Contraception.(Available at:) (Accessed October 5, 2021)
- Cystic Fibrosis Foundation patient Registry report 2019.(Available at:) (Accessed October 5, 2021)
- Exploring the reproductive decision support needs and preferences of women with cystic fibrosis.Contraception. 2021; 103: 32-37
- Reproductive health in young women with cystic fibrosis: knowledge, behavior and attitudes.J Adolesc Health. 1995; 17: 46-50
- Sexual and reproductive health behaviors and experiences reported by young women with cystic fibrosis.J Cyst Fibros. 2018; 17: 57-63
- Risky behavior in teens with cystic fibrosis or sickle cell disease: a multicenter study.Pediatrics. 1998; 101: 250-256
- Urinary incontinence in cystic fibrosis.J R Soc Med. 2005; 98: 28-36
- Prevalence and impact of pelvic floor dysfunction in an adult cystic fibrosis population: a questionnaire survey.Int Urogynecol J. 2017; 28: 591-604
- Prevalence and factors associated with urinary incontinence in females with cystic fibrosis: an Italian single-centre cross-sectional analysis.Pediatr Pulmonol. 2021; https://doi.org/10.1002/ppul.25723
- Talking about sex: the training wants and needs of the CF interprofessional team. Conference Abstract.Pediatr Pulmonol. 2018; 53: 444-445
- Prevalence of pelvic incontinence in patients with cystic fibrosis.Glob Pediatr Health. 2017; 4 (2333794x17743424)
- Diversity of reproductive tract abnormalities in men with cystic fibrosis.JAMA. 1996; 276: 607-608
- Questionnaire survey of urinary incontinence in women with cystic fibrosis.BMJ. 2001; 322: 1521
- Incontinence in adult females with cystic fibrosis: a Northern Ireland survey.Int J Clin Pract. 2003; 57: 182-183
- The prevalence of urinary incontinence in adult cystic fibrosis males.J Cyst Fibros. 2005; 4: S97
- A survey of sexual and reproductive health in men with cystic fibrosis: new challenges for adolescent and adult services.Thorax. 2005; 60: 326-330
- Sexual and reproductive health of young women with cystic fibrosis: a concept mapping study.Acad Pediatr. 2019; 19: 307-314
- Sexual health issues after lung transplantation: importance of cervical screening.J Heart Lung Transplant. 2004; 23: 894-897
- High proportion of abnormal pap smear tests and cervical dysplasia in women with cystic fibrosis.Eur J Obstet Gynecol Reprod Biol. 2018; 221: 40-45
- Contraceptive practices and cervical screening in women with cystic fibrosis.Hum Reprod. 2015; 30: 2547-2551
- Prophylactic vaccination against human papillomaviruses to prevent cervical cancer and its precursors.Cochrane Database Syst Rev. 2018; 5: CD009069
- Guidelines for cervical cancer screening in immunosuppressed women without HIV infection.J Low Genit Tract Dis. 2019; 23: 87-101
- Attitudes and decision making related to pregnancy among young women with cystic fibrosis.Matern child Health J. 2017; 21: 818-824
- Sexual and reproductive health knowledge in cystic fibrosis female patients and their parents.J Sex Med. 2009; 6: 770-776
- What deficits in sexual and reproductive health knowledge exist among women with cystic fibrosis? a systematic review.Health Social Work. 2012; 37: 29-36
- Challenges faced by women with cystic fibrosis.Clin Chest Med. 2021; 42: 517-530
- Contraception in women with cystic fibrosis: a systematic review of the literature. Review.Contraception. 2016; 93: 3-10
- Contraceptive safety among women with cystic fibrosis: a systematic review. Review.Contraception. 2016; 94: 621-629
- U.S. Medical eligibility criteria for contraceptive use, 2016.Mmwr Recommendations Rep. 2016; 65: 1-103
- Impact of lung inflammation on bone metabolism in adolescents with cystic fibrosis.Paediatr Respir Rev. 2001; 2: 324-331
- Totally implantable venous access devices in children with cystic fibrosis: incidence and type of complications.Thorax. 1998; 53: 285-289
- Potential impact on fertility of new systemic therapies for cystic fibrosis.Paediatr Respir Rev. 2015; 16: 25-27
- Lumacaftor/ivacaftor (Orkambi) United States prescribing information.2018 (Available at:) (Accessed October 5, 2021)
- Elexacaftor/tezacaftor/ivacaftor (Trikafta) United States prescribing information. Updated October 2021.(Available at:) (Accessed October 5, 2021)
- Tezacaftor/ivacaftor (Symdeko) United States prescribing information.(Available at:) (Accessed October 5, 2021)
- Ivacaftor (Kalydeco) United States prescribing information updated 9/2020.(Available at:) (Accessed October 5, 2021)
- The outcome of pregnancies in women with cystic fibrosis-single centre experience 1998-2011.BJOG. 2013; 120: 354-361
- Guidelines for the management of pregnancy in women with cystic fibrosis.J Cyst Fibros. 2008; 7: S2-S32
- Baseline Cystic fibrosis disease severity has an adverse impact on pregnancy and infant outcomes, but does not impact disease progression.J Cyst Fibros. 2021; 20: 388-394
- Pregnancy outcome in women with cystic fibrosis and poor pulmonary function.J Cyst Fibros. 2020; 19: 80-83
- Pregnancy and cystic fibrosis.Obstet Gynecol. 1991; 77: 850-853
- Fertility and pregnancy in patients with cystic fibrosis. Review.Clin Chest Med. 1992; 13: 623-635
- Pregnancy in cystic fibrosis. Review.Clin Chest Med. 2011; 32: 111-120
- Academy of nutrition and Dietetics: 2020 cystic fibrosis evidence analysis center evidence-based nutrition practice guideline.J Acad Nutr Diet. 2021; 121: 1591-1636.e3
- Aggressive prenatal care results in successful fetal outcomes in CF women.J Cyst Fibros. 2006; 5: 85-91
- Teratogenicity of high vitamin A intake.N Engl J Med. 1995; 333: 1369-1373
- The outcome of pregnancy in women with cystic fibrosis: a UK population-based descriptive study.BJOG. 2020; 127: 1696-1703
Raksha Jain AK, MinJae Lee, Natalie West, Traci M. Kazmersk, Moira Aitke, Andrea H. Roe, Denis Hadjiliadis, Ahmet Uluer, Sheila Mody, Patrick Flume, Leigh Ann Bray, Jennifer Taylor-Cousar. Effect of pregnancy on lung function: impact of CFTR modulators. presented at: NACFC; 2021; North American CF Conference, held virtually, October 2021.
- Pulmonary hypertension and pregnancy outcomes: Insights from the National Inpatient sample.J Am Heart Assoc. 2017; 6https://doi.org/10.1161/JAHA.117.006144
- Periconception glycaemic control in women with type 1 diabetes and risk of major birth defects: population based cohort study in Sweden.BMJ. 2018; 362: k2638
- Use of maternal GHb concentration to estimate the risk of congenital anomalies in the offspring of women with prepregnancy diabetes.Diabetes Care. 2007; 30: 1920-1925
- Committee Opinion No. 691: carrier screening for genetic conditions.Obstet Gynecol. 2017; 129: e41-e55
- Sequencing as a first-line methodology for cystic fibrosis carrier screening.Genet Med. 2019; 21: 2569-2576
- CFTR variant testing: a technical standard of the American College of Medical Genetics and Genomics (ACMG).Genet Med. 2020; 22: 1288-1295
- Fertility and pregnancy outcomes in men and women with cystic fibrosis in the United Kingdom.Hum Reprod. 2004; 19: 2238-2243
- Cystic fibrosis mutation screening before assisted reproduction. Review.Int J Androl. 2004; 27: 1-4
- Fertility and pregnancy: common concerns of the aging cystic fibrosis population. Review.Clin Chest Med. 2007; 28: 433-443
- Women with cystic fibrosis and their potential for reproduction.Thorax. 2001; 56: 649-655
- Cystic fibrosis and fertility. Review.Curr Opin Obstet Gynecol. 2013; 25: 167-172
- Differential cellular expression of cystic fibrosis transmembrane regulator in human reproductive tissues. Clues for the infertility in patients with cystic fibrosis.Am J Pathol. 1994; 144: 906-914
- The cystic fibrosis transmembrane regulator gene is expressed in the human endocervix throughout the menstrual cycle.Fertil Steril. 1997; 67: 636-640
- Estrogen and progesterone differentially regulate the levels of cystic fibrosis transmembrane regulator (CFTR), adenylate cyclase (AC), and cyclic adenosine mono-phosphate (cAMP) in the rat cervix.Mol Reprod Dev. 2015; 82: 463-474
- Water and electrolytes in cervical mucus from patients with cystic fibrosis.Fertil Steril. 1973; 24: 512-516
- Fertility issues in cystic fibrosis. Review.Paediatr Respir Rev. 2002; 3: 236-240
- Critical role of CFTR in uterine bicarbonate secretion and the fertilizing capacity of sperm.Mol Cell Endocrinol. 2006; 250: 106-113
- Men's health in the modern era of cystic fibrosis.J Cyst Fibros. 2020; https://doi.org/10.1016/j.jcf.2020.12.013
- Pregnancy among cystic fibrosis women in the era of CFTR modulators.J Cyst Fibros. 2017; 16: 687-694
- A case report of pregnancy during use of Targeted Therapeutics for cystic fibrosis.J Obstet Gynecol neonatal Nurs. 2017; 46: 72-77
- A step-by-step guide to office-based sperm retrieval for obstructive azoospermia.Transl Androl Urol. 2017; 6: 730-744
- Sperm retrieval techniques for assisted reproduction.Int Braz J Urol. 2011; 37: 570-583
- Intrauterine insemination for infertility due to cystic fibrosis.Fertil Sterility. 1986; 45: 425-426
- In vitro fertilization and multiple pregnancies: an evidence-based analysis.Ont Health Technol Assess Ser. 2006; 6: 1-63
- Intrauterine insemination + controlled ovarian hyperstimulation versus in vitro fertilisation in unexplained infertility: a systematic review and meta-analysis.Arch Gynecol Obstet. 2021; https://doi.org/10.1007/s00404-021-06277-3
- Cystic fibrosis Foundation patient Registry report 2020.(Available at:) (Accessed October 5, 2021)
- ERS/TSANZ Task Force Statement on the management of reproduction and pregnancy in women with airways diseases.Eur Respir J. 2020; 55 (no pagination)1901208
- Family-building and parenting considerations for people with cystic fibrosis. Review.Pediatr Pulmonol. 2021; https://doi.org/10.1002/ppul.25620
- Pregnancy in cystic fibrosis: review of the literature and expert recommendations. Review.J Cyst Fibros. 2021; https://doi.org/10.1016/j.jcf.2021.07.019
- A CFTR potentiator in patients with cystic fibrosis and the G551D mutation.N Engl J Med. 2011; 365: 1663-1672
- Elexacaftor-Tezacaftor-Ivacaftor for Cystic Fibrosis with a Single Phe508del Allele.N Engl J Med. 2019; 381: 1809-1819
- Efficacy and safety of the elexacaftor plus tezacaftor plus ivacaftor combination regimen in people with cystic fibrosis homozygous for the F508del mutation: a double-blind, randomised, phase 3 trial.Lancet. 2019; 394: 1940-1948
- Effect of VX-770 in persons with cystic fibrosis and the G551D-CFTR mutation.N Engl J Med. 2010; 363: 1991-2003
- Tezacaftor-ivacaftor in residual-function heterozygotes with cystic fibrosis.N Engl J Med. 2017; 377: 2024-2035
- Measured fetal and neonatal exposure to Lumacaftor and Ivacaftor during pregnancy and while breastfeeding.J Cyst Fibros. 2018; 17: 779-782
- Outcomes of pregnancy in women with cystic fibrosis (CF) taking CFTR modulators - an international survey.J Cyst Fibros. 2020; 19: 521-526
- Maternal and fetal outcomes following elexacaftor-tezacaftor-ivacaftor use during pregnancy and lactation.J Cyst Fibros. 2021; 20: 402-406
- How do cystic fibrosis patients experience parenthood? A systematic review.J Health Psychol. 2021; 26: 60-81
- Pursuing parenthood with cystic fibrosis: reproductive health and parenting concerns in individuals with cystic fibrosis.Pediatr Pulmonol. 2019; 54: 1225-1233
- 'I've got to prioritise': being a parent with cystic fibrosis.Psychol Health Med. 2017; 22: 744-752
- The effect of pregnancy on survival in women with cystic fibrosis.Chest. 2003; 124: 1460-1468
- Long-term effects of pregnancy and motherhood on disease outcomes of women with cystic fibrosis.Ann Am Thorac Soc. 2013; 10: 213-219
- Paternity in men with cystic fibrosis: a retrospective survey in France.J Cyst Fibros. 2006; 5: 215-221
- Implications of fatherhood in cystic fibrosis. Review.Paediatr Respir Rev. 2019; 31: 18-20
- Optimizing sexual and reproductive health across the lifespan in people with cystic fibrosis.Pediatr Pulmonol. 2021; https://doi.org/10.1002/ppul.25703
- Addressing potential pitfalls of reproductive life planning with patient-centered counseling.Am J Obstet Gynecol. 2017; 216: 129-134
- It just happens": a qualitative study exploring low-income women's perspectives on pregnancy intention and planning.Contraception. 2015; 91: 150-156
- Reproductive life planning and patient-centered care: can the Inconsistencies be reconciled?.Matern Child Health J. 2019; 23: 869-870
- Rethinking the pregnancy planning paradigm: unintended conceptions or unrepresentative concepts?.Perspect Sex Reprod Health. 2016; 48: 147-151
Family Planning: Cystic Fibrosis and Reproductive Goals, Cystic Fibrosis Foundation; Bethesda, MD.
- One key Question(R) and the desire to avoid pregnancy scale: a comparison of two approaches to asking about pregnancy preferences.Contraception. 2020; 101: 231-236
- Reproductive justice as Intersectional Feminist activism.Souls. 2017; 19: 286-314
Article info
Identification
Copyright
© 2022 Elsevier Inc. All rights reserved.
